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You are back now so please just take these next few days to just stop. I dont know whats going on. That is actually a big fat lie. I would like to rip its face off with my bare hands. I keep telling myself, I have to get through September first, but I truly dont know if I can wait that long. We dont have many plans for the weekend. I know that running away would not have solved my sadness, but living in the same house, without you is hard for me. He was proud of the advice he gave me that I listened to. 2o minutes after taking that evil little pill and Go figure. Im too sick to laugh. Woody called me from the plane and told me what had happened. Ronan. There is nothing sweet and fluffy about having to dig your babies ashes out of his urn to place them in a plastic baggie, so you can take him on a trip with you. I love you. Since you cannot be here, to kick ass at this sport, I now feel like I should do this for you. We sat for a while longer and caught up. Im afraid this is the best it is going to get. They offered to buy a new one. Are you laying with your child, as he takes his last breaths? I was holding him and our Mr. Sparkly Eyes came into the room. She sat with me for a good half an hour to discuss how I am doing, how I am feeling, how I am dealing with all of this, and how much I miss you. I just continued to cry into the phone for the next few minutes while he just sat and listened. So good. They deserve more compassionate treatments. About you and all of these other kids who are dying left and right from childhood cancer.I am so thankful for the people who are now paying attention and fighting the good fight, but I just dont understand whythe wholeworld isnt in an uproar over this. I miss you. I usually fall back asleep around 5 a.m. I can do this. As of now, I cant talk about our news. Once I got to my car, I knew it would be a while before I was able to leave the parking lot. She has given me such a gift already and she is only a week old. You should have been causing trouble somewhere like I know you would be doing, if you were here. You two had a bond and almost a secret language. Well, 3 actually but Im only going to talk about 2. My life kind of depends on it. I spent the next couple of days, wishing for death just due to how physically awful I felt and for the first time, it was due to something else then the loss of you. He laughed at that. Its got to be something bad, because too many good things are happening lately. I texted her back, Is it good news or bad news? I was expecting the bad from my friend and foundation president. I am so sorry that you had to be taken away. AKA-the Devil. She needs a break and this trip is just what the doctor ordered. Consider it done. he said. My days feel so sad and lonely without you here, and with me, being stuck at home because I am literally too tired to function. Carolyn called me and left me a message that said something like, This is the yellow brick road and you are Dorothy! That make me smile so big. You know how important it is to me, not to spend the money that people are donating on administration stuff. Alright little man. Are you sure? The technician told me she was about 90% sure. So much so that I am wondering if Ill become a vegetarian after this. Ive been living off of pie. These kids, deserve to be embraced. You see, I am not only doing this to make some money for your foundation, but I am also doing this to help us get through May. I could tell your Nana was a bit sad about this but I just said, Mom, I dont know how or what I am going to be feeling and I just want to be able to be, without having the pressure of having to fake like I am feeling one way, if I am not. She just gave me a squeeze and told me, Of course, honey. AKA-the Devil. Not really. That is basically like naming her Wooddawg. I had to laugh at that. Yes, The White House should be GOLD. Because I do. Now if I can only get those brothers of yours on Team Poppy. I gave into it. You didnt see everything he went through, but you saw more than most people. We went to dinner in this big city last night. Im better. On to the next. Only Eddie Vedder could drink wine on a stage and make it lookbadass. I just want this to all be a dream and to wake up now. As we drove to our hotel, I spent the majority of the car ride, quite, with tears streaming down my face. No sleep needed. She talked about how she was so excited to run this but then pulling up to park and seeing your little face on the poster was just awful. But I miss the days when life was always beautiful, always joyful, always full of such love and laughter. You with a baby girl. I'm landing close to midnight. What amazing little girls. Ive got to go now, Ro. I think I am starting to feel a little better and pie is still my best friend. I love you. I'm trying to get there as fast as I can. I felt a connection with her that I often dont feel after just meeting someone for the first time. Because if I would have left that meeting today and had to report back to your daddy/board members about the conversation that was had, they would have all told me to get out of my fantasy world and back to reality. NOWHERE. Your Fairy RoMo just happened to be in town for this meeting. Not even her. Nobody deserves to get cancer, but especially not children. We left our friends and headed off to our new destination. They so want to help with our mission and were so touched by our story that they created this show called Emotional Mojo. It shouldnt be, because of this beyond fucked up fuckery that she is surviving. Ronan. I am so excited to meet this beautiful gift you have given us. I would give both of my arms for those problems. Im sure my feeling this way is due to a combination of things. I am going to need some time with her. No matter how frustrated or sad I get because I know at the end of the day, youre not coming back. No words last night could have saved me. I knew I wanted to go there during this trip but I imagined going all alone and crying into my favorite soup. "Ronan" was released on September 8, 2012, as a charity song by Taylor Swift. I think its a big part of the missing piece of the puzzle of this sometimes detached from emotion reality that these doctors live in. Because he is the best daddy ever, he will. Mission accomplished without having a breakdown. I know tomake a statementlike that is a bold thing to say, but I can say without a doubt, she has saved my life. My days are mostly spent taking care of her while continuing to fight for you and all that was stolen from us. I know this lesson they are learning in life and about your story will shape them in a way that they will go on to do amazing things. I found out on her birthday, which was not planned at all! I dont feel brave. Having her in your room was a good decision on our part. Your birthday which also happensto bethe day youwere cremated. I am forever so very sorry I couldnt fix you. Thank you to all of my rad hometown babes who worked so hard to get this all done. I know she did not have to do this. She is doing amazing things with it. I was not going to mention to him, how I had been crying most of the day but apparently my bloodshot eyes were not cooperating. Do you know what else Ive gotten to do the past couple of days? Fuck this FUCK THIS FUCK THIS!!!!!!!!!!!! It felt like it today. I think the phone call went really, really, well. And it was to childhood cancer. He had read my last blog post about how barbaric the cancer world is. Swallow pill. The ultra sound tech could not get over her long, long legs. I don't have any idea who that is." I looked up at Mr. Sparkly Eyes, and yes, his eyes still sparkle. In my mind, Ive walked out with your costume at least 50 times. Best news ever. Everything feels extra heavy, hard, sad, and the slightest things take up every ounce of energy I have just to get through the day. I will never understand why this is acceptable. We are truly grateful to have him on our side. with this crazy girl hugging her and trying to find the words to tell her thank you. I know this would be your sport too, if you were still here. Some things I like to keep private, like peoples real names. She also told me she hoped I was o.k. It is already her name, and she is not even here. This weekend is a busy one. I often feel like after you died, we should have just up and moved to freaking Australia or somewhere crazy. I cant wait for the day that I can see you again. Ive been keeping myself busy enough because my life depends on it. I sat today and tried to be productive. Staying in bed, in NOT good for my mental well being. Happy and fancy. Laughing as you would pick all the flowers around our neighborhood from other peoples yards, thinking you were so naughty for doing so. My favorite kind of trip. The stars magically aligned for the worst reasons possible so your Fairy RoMo has been in AZ for a little over a week now. I tried my best. I left there feeling like I am somewhat in control of this even though I know I am not. Nowhere else. Liam has been going on some runs with me at night, but I had no idea he could run 3.6 miles in 30 minutes. All happy and carefree. Quinn came in just a few minutes after him. A sleepy little town, where it seems as problems do not exist. Am I pushing things a bit? Ill keep you posted on when things are ready. It felt good just to be out with my friend. My list came in my mind later as I named off a few things, but really just thanked him for being such a dear friend. I sent Dr. Jo a text to tell her that this conference desperately needed her there. Ronan. It was Dr. Schwartz telling me that she just got the flu shot in and she was highly recommending that I get one. Im a mom. I am going to take the day that you left me and rename it and make it the name that it deserves. Miss you." AF says: July 28, 2011 at 5:59 AM. I could hardly get that story out without choking on my tears. I have had a blast and it is a healthy, good distraction. I miss you. They help me to survive this life I live now, without your sparkly eyes, little laugh and sweet lips. The girls asked if I still had your Captain Rex costume. After the Stand Up to Cancer benefit, "Ronan" was only released on iTunes, with all proceeds donated to the Taylor Swift Charitable Fund. He said he knew. My time sucked but today, I had nothing to prove at all. Him: I do. Ive been hiking like crazy, with Poppy in tow of course. I cant go home to an empty house. Insert sobbing so uncontrollably that I couldnt even finish my sentence, here, Me: Im sorry. It destroys me everyday that we now have to physically be apart and I cant take care of you, look after you, or keep you safe. Im a mom whose heart is broken into a million pieces because this little boy, was mine. Getting out of Phoenix was the right thing to do. 0 faves. I almost made your daddy take me to the ER as I thought I was massively dehydrated. I have been mentally visualizing myself walking into that hospital but then having to walk out with my dead childs costume. Why would I want to break it anymore? I wonder if that was a sign of whats to come. Their happy, is too loud. I know what that feels like. I love you so much. I hope you are safe. He deserved to be mine, for much longer than almost 4 years. There Are 2 Things in Life I Will Never Say No To. He was so tiny and frail. Everything is different. I hope you know I am thankful for you taking the time to learn about Ronan and for every single penny that comes our way. Nothing. Mawahahahahaha. My days are so consumed with trying to be the best mama to your brothers and sister. I love the way we gather around our kitchen table, somebody always brings food, and we get down to business. How stopping will make me want to run up my mountain 8 months pregnant and not come back down. I told him to hang on, that if I didnt send this email, I would forget to do it. He sat. It was quiet. I think Im having a mid-life crisis. Why the fuck did this happen? I talked to George Clooney last night and Im going to run off with him. (inside joke, but I really did freaking talk to George Clooney thanks to one Fairy Bad Ass RoMo) And my all time favorite, Where is Ronan and who is taking care of him? I got sat down and talked to in the harshest but kindest way. They didnt. Thanks for not listening, or caring in my opinion. I had been going back and forth with your Sparkly on some things. I am trying to relish in all the beauty of this but it is secretly making me hostile. How much more blood needs to be shed? I had the talk with Stacy and Fernanda this week. I love you. The sweet lady told me it was. I guess it was good that I had a fairly quiet week because I am going to need to find my energy for this weekend. The most important thing of course that has been consuming me. Once in a formal setting and once again, outside of her office. I punched a pillow and went back to sleep. Mandy Bee offered to come and sit with them while I went back for my appointment. Mandy came over and grabbed my head and kissed the top of it. You will never hear me complain about fevers, strep throat, throwing up, etc Those things to me, are blessings. I went to see your Sparkly for a bit. Its because when I first found out I was pregnant, it was the size of a poppy seed. Come on, settle down. I hate seeing him on days like today where I am so sad that I can tell it hurts him. I should have been his, for much more than almost 4 years. Ronan. That oh so fun place only moms get to go that have had a child who has died. We are going to go to dinner when they get home. Not even his witty remark made me giggle. Not always is good enough for me, as of now. I am proud, too Ronan. Lots to do but all I really want to do is be busy taking care of you. I have a ton more to write about, but I have to get ready for this little Skype interview set up that I am doing. Thanks for learning this lesson and letting it make you a better person. Posted on December 1, 2021 Categories Uncategorized Tags All good things are wild and free, bereaved parents, Cancer, childhood cancer, Childhood Disease, doctors, Family, Grief, Health, honesty, maya thompson, Mr. Sparkly Eyes, Music, Neuroblastoma, raw, reality, Rockstar Ronan, Ronan, ronan thompson, sadness, strength, Taylor Swift, tears . I dont my hatred with meat will last, but as of now the thought of it makes me ill. Pie. Just as I was saying to her, How am I going to survive these next two months? A text popped up on my phone. I am up due to feeling sick to my stomach from this Poppy that grows in my belly. But on nights like last night, I dont have a choice. Poppy is developing such a little personality and at 7 months, is already trying to walk. I love you. Another one of those crazy, good days where something so big happens, that I have seriously been jumping up and down all day long. How could my totally healthy, beautiful baby boy be so healthy, and then have fucking stage 4 cancer just like that? A few hours later, I got the news. The things you learn at 2 a.m. Thankful for the opportunity to continue talking about Ronan, Taylor, childhood cancer, and the horrifically hard world of bereavedparents. I sat and watched it. I just want to sit and cry, so I do. This led to him calling my phone. I thank you for him, every single day. We sat outside of her office and I told her some things that I dont share with just anyone. Oh, and I saw Dr. Eshun again today. I love you. Your birthday is the same day as Mothers Day. I am overwhelmed. I saw your Sparky yesterday. I honestly do. I hope today I can manage to be a little productive. I dont even want fucking justice. "My darling. Ryan Stahr Kulchinsky (born January 7, 1978) is an American rock singer-songwriter from Long Island, New York, currently signed on Island Records.His first major label record 11:59, released via Atlantic in 2010, reached No. We shall see, right Ro baby. All I know is this is the way it is. I am really glad about that because of days like today that seem to just magically fall into place when I need a big slap in the face of why what I am doing, is so important. I will never understand so I will spend the rest of my life, trying to fix this. Now, since this vampire baby seems to be sucking the life out of me, I can hardly get my head up off of my pillow in the mornings to take your brothers to school. It seems to completely throw them all off. We both left our breakfast/meeting, speechless to say the least. Hearing those words from her meant a lot to me. I truly think you thought you were just going to go to sleep and wake up once again, after we got you all better. But it still feels a little like a betrayal to you. A light-hearted but heavy-hearted way to make some money to get Dr. Mosses trial funded, seemed like the way to go. I was getting ready for our little board meeting and I should have suspected something.. but I just chopped it up to being tired. Agreed. I love you. It still blows my mind that you are never there. I went to see my OBGYN a couple of days ago, just for my 4 week standard check-up. Tricia. Her baby, was 21 when she was diagnosed. This extreme fatigue and nausea, are mentally beating me down. Next month. Ireland! I almost fell over. This baby girl, is going to have so many beautiful aunties. Its all so unfair. Even a 45 minute car ride. Thank you, Ronan. The going to New York thing all alone. How are you always right? Tonight a big dose of reality is waiting for me as I step off this plane. How I miss the simple days of chasing you around. This is why, I have been doing everything from our house. I had a good day. No way could it really be a girl. Such a little skeptic he is. Everyday, she is surviving Ronan. Like you are missing and not actually dead. Ronan. on Bye Bye Little Sad House! By taking a little time out to go to New York. What perfect timing. I am so very sorry. This book writing has left me not sleeping or eating well and may be part of the reason why I feel like Im no the verge of a breakdown. I miss you. Gnite, babydoll. It wouldnt have been this way, if you were still here. She has a Ronan. It is her birthday today. I, of course went to, Oh fuck. I called your Sparkly up. I was walking back to my car and I just fucking lost it. This is the end of your story for tonight, baby doll . Please rest. Youre doing too much.. Its comforting to your daddy and brothers so this is why I stay here. My mind is always wandering to where you would be sitting, what you would be eating, how beautiful your little face would have looked lit up by the flickering of the candlelight. I think I stumbled on a few things. And no. I cried after I dropped your brothers off at school, I cried over every single Taylor Swift song that came on the C.D. I miss you. A lot is wrong with me, actually. Dear Grief/Pregancy, You will NOT kill mysoul. I needed the blackness of the night that only exists due to this little frienemy of mine. I wake up exhausted. I love you so much. Watch out childhood cancer! I love you, Ronan. I know this is not true. I am doing this to protect myself because I already know I am going to need the time. You know how I am about just letting things, happen when they are supposed to. The lady started measuring some things. I know you know how much we all need her. She told me I could have chosen to do anything after losing you, but this chose me and its what I will do for the rest of my life. Thats all for tonight. Because you know the world I live in now, and you know I am scared shes going to die if you let me go to my due date. The way I run myself ragged, Im surprised it took this long. Thats all for now little man. Once again, I am so grateful and humbled by the kindness of strangers. I am so grateful to everyone who came to support your foundation. I'm on my way home, and then I'm getting on a flight. I cannot process this. I love people like that. Who is the jackass that made up that wise saying? That pain becomes less as time goes on. Her little face is all filled out. Im looking for you. The song was supposed to be on her original RED album, but her record executive, Scott Borchetta, did not think it would be a good fit for the album, so she released it as a stand-alone single to help benefit cancer charities. Just because I am tired and sick does not mean I have to roll over and totally give into that, right?? They turned out beautifully. So funny. I did see my life flash before my very eyes a couple of days ago when I found myself in bed, on my 6th Cadbury Cream Egg, and watching The Kardashians. I had a moment of sheer panic wash over me as I thought to myself, Who am I?? I cannot keep up with everything that is going on and life seems to running at an outrageous speed. We have so much going on which we are all so thankful for. Fernanda came up with the brilliant idea to find an actual mannequin and dress him up like Captain Rex to look like he is playing next to the tree. There was one person I had not told yet. I know myself well enough to know when I am not capable of handling things on my own. Now that Ive met you, youre in. It was like I was let into the most exclusive club that ever existed. And I hurt for my friend who had to bury her child who was pretty much an adult. She told me that she knows that this is a gift from you. I told him I would, but only because he told me to do so. Dude. Seems nobody wants to take on that topic. I have a ways to go. I will never be o.k. Thanks for making it rain on him the other night while he was out for a walk with his mama. I felt myself panic. I am also very productive at 2 a.m. I have been getting through the days alright really; I suppose. It seems to be filled with all the wrong things, the wrong people hurting others, the wrong everything. I grab my Ambien that I now only take due to emergencies. I worry about it with your brothers, too. I guess I wrote a lot about having another baby when you were still here. I might have to end this now. THANK YOU. Ill never forget all the pokies, we had to give you after your rounds of chemo. Our conversations area always easy and honest. You have to carry this around with you forever, while the ones who cared about Ronan, your family, your friends, get to go on with their lives. Lights out for the next 7 hours. It actually makes me laugh. I tappedon our kitchen the window. Today is an amazing example of good things that will keep me going. Every year since you left when Mr. Sparkly Eyes' birthday rolls around, I always give him a card that I've made for him through my iPhoto with a picture of you on it. As far as an update goes, things here for the most part have been normal. Your room no longer seems so sad, empty and cold. You only left me with the best and for that, I will always be thankful. I dont get a life full of beauty, only moments. I miss you. Certainly not this nowhere that is here now. I woke up this morning, all bright-eyed and bushy-tailed. I fell asleep early while your brothers played some zombie fighting video game in the living room. How can we make this happen? What I wouldnt give to have just one more second with you. And maybe a little less sad. I asked him how I was ever supposed to face the world again as I never went anywhere without Ro, my little partner in crime. Your daddy keeps reminding me how much you wanted a brother or sister. What do you mean, I cant talk to him anymore? Any of it. THANK YOU. I missed you tonight, when we were riding in our old jeep to the restaurant. I miss you. Dr. Sholler gets in Friday night to me my surrogate runner and I am so excited to see her and have her here. I hope you are safe. And the people that work in this building, could not be lovelier! Why is the house so quiet? I dont like when I have to stay cooped up all day, not running around doing 50 million things. Where are you? He responded with In a meeting. A couple of things dawned on me tonight after I dropped by dinner to your Mr. Sparkly Eyes. Sweet dreams. Stay tuned:) I miss our city, so very much and now I might just have a great excuse to get my pregnant ass back out there, puking and all. I love our little unconventional board. Not because I dont love it. Sweet dreams, baby boy. We have had those picked out for a long time. Im not doing this to be hurtful or mean. And how in the world am I living without him? We will spend some time with our Fairy RoMo which is the thing I am most excited about. Wheres Ronan? I hurt badly from this and I only get to feel this on a small scale compared to you. I will be just as happy if this is a boy, too. Having a baby is emotional under normal circumstances. Thats what landed me in bed and somehow sucked me into the land of reality television which is so far from reality that it makes me want to barf. Proof that you are still here, taking care of me, the best way that you can. Sooooooo New York!!! Talk about another huge sign! I am a good mother. Grief, reality, Inferno Fuckwad Bob, were all there waiting for me. Ive had your brother home sick 3 days this week. So much. the ideas would not stop flowing. Diving into the freezing ocean like I know you would have. That will never go away. Welcome to our new home! Its starting to annoy me. Gladly. Of course it did. I begged and pleaded with you once again in the parking garage. I cannot wait for next year and I am so proud to call this place, home. Well, thats the world I live in, Ronan. We were invited to a lunch that at a house that lasted much of the day. Something unlike anything that has ever been done before. Walking in with it was easy. I think that is appropriate since it is the day that cancer stole you. In a conference room full of people, alligator tears were uncontrollable. THANK YOU. This pregnancy/growing your baby sister is hard freaking work. I will get through it the best I can, just like I did last year. I had visions of the signs I would hold, while bouncing Poppy on my hip. We have about one idea for a first name. I dont know if this made me feel better, but I appreciated her taking the time to talk about the questions I have. I think I told you that I tried to prep, with Dr. JoRo about this whole getting pregnant thing. That woman humbles me like no other. I have not been sleeping well. Our seal needed a little make-over and update. I have a bunch of families that I will be thinking of, not just our own. I remember our last moments together. Does it start with baby steps while everyday, kids are just being murdered, left and right? I wonder if my never-ending tears are because of how much I miss you, or all of my hormones due to being pregnant or a combination of everything. If it was not, things like this would not just continue to happen over and over again. It felt like home. Today you will be slapped in the face with the reminder that everything is AWESOME in AZ because it is a perfectly sunny happy fucking day. Something these families and kids so deserve when going through something like this. The exact same things feel so wrong and are so hard for me. Of course I am happy to see them but its you I want to see the most and you are never there, waiting for me with the 3 of them like you should be. I hope you are safe. But if I would have said something, it would have been something like this: Im not a doctor. Maybe Ill take in on in my free time. I told your brothers once again, how I really want to name this baby girl, Poppy. Everything seems to be suffocating me. Your brothers are playing a slew of sports 24/7. I have taught myself it is better to go into something not expecting a thing that way less disappointments occur. I need to find a hobby during my witching hours. I sent him a text. Nothing could have prepared me for what it is like to be pregnant, after losing you. I know he will keep her safe. I let it continue to play. A lot of my blog readers have been posting that you said you wanted a baby sister. The song finished. What is today? I fucking hate 2 a.m. 2 a.m. blows.
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